本帖最后由 StarCare 于 2025-5-8 17:02 编辑
“无人知晓，有些人仅仅只是为了保持正常，就已经用尽所有力气了...”
"Nobody realizes that some people expend tremendous energy merely to be normal." -- Albert Camus
Dana's View，首页上这句话，看着就让人心酸...
维生素A对RNA病毒的逻辑
- 维生素A通过核受体（RAR/RXR）结合，调控靶基因的转录，间接影响RNA的合成。
- 在上皮细胞、免疫细胞分化过程中，维生素A通过调控基因表达影响RNA的剪接和翻译。
Dana's View - High Dose Vitamin A Protocol [for measles virus]
高剂量维生素 A 方案 [针对麻疹病毒]
[本页面的第一部分由杰奎琳・麦坎德莱斯（Dr. Jaquelyn McCandless）撰写。]
信息 #1
关于连续两天服用 40 万国际单位维生素 A（针对麻疹的超大剂量维生素 A 方案）：这是为错过该信息的人重新发布维生素 A 治疗方案。我担心有人因维生素 D 中毒风险而使用 50 万国际单位的鳕鱼肝油（CLO）形式补充剂。尽管当前对维生素 D 中毒的担忧可能被高估，但在我们了解更多信息之前，服用如此高剂量仍属不明智。
在宾夕法尼亚州的 DAN! 会议上，西德尼・贝克（Dr. Sidney Baker）医生提到一项研究显示，20 万国际单位的维生素 A 不足以减轻麻疹感染的影响 —— 儿童需要连续两天服用 40 万国际单位（总计 80 万国际单位）。如我之前所述，如果儿童的风疹唾液 IgA 滴度升高（根据我们的研究）、IgG 水平显著升高、有对 MMR 疫苗强烈反应的病史和 / 或接种后不久出现发育倒退，且脑抗体显示存在自身免疫反应，我认为这些迹象表明他们可能受益于这种大剂量方案，之后根据年龄和体型每日服用 1 万至 2.5 万国际单位。一些家长报告称，即使较小剂量也有效果，我最初建议的是第一天 25 万国际单位，然后 20 万、15 万国际单位等，维持剂量为 1 万至 2.5 万国际单位（减去鳕鱼肝油中最多 5000 国际单位，其余通过鱼油维生素 A 或维生素 A 棕榈酸酯补充）。
选择哪种形式？鱼油维生素 A vs 维生素 A 棕榈酸酯？潘伯恩（Dr. Pangborn）医生提供了以下信息：“根据《默克索引》，全反式或视黄醇的棕榈酸酯形式是鱼肝油（鳕鱼、鲨鱼）中主要的酯类。但除非需要像西德（贝克）描述的药理剂量，否则我不建议使用合成维生素 A 棕榈酸酯。—— 合成棕榈酸酯可能对过敏体质者有问题。—— 天然鱼油包含全反式视黄醇、顺式视黄醇，可能还有一些非常相似的分子。合成棕榈酸酯未必含有这些成分。—— 我对合成物持谨慎态度，但对于超过 20 万国际单位的剂量，可能不得不使用实用的形式。（参考《默克索引》第 10150 项 “维生素 A”）
在固体或粉末补充剂中，常见的是维生素 A 醋酸酯，其效力约损失 15%。
每日剂量低于 5000 国际单位时，无需检测血清视黄醇水平，事实上检测结果也不可靠。最重要的是观察维生素 A 过量症状：头痛、恶心、皮肤干燥脱屑、眩晕、视力模糊、红斑或皮疹。血清钙会升高，因为维生素 A 过多症的特征之一是高钙血症。”
信息 #2
我收到大量关于该主题的个人电子邮件，因此需要澄清：当麻疹病毒存在时，维生素 A 会被特别 “消耗”，研究表明，在活动性麻疹病毒感染时，连续两天超大剂量服用 40 万国际单位维生素 A 会对麻疹病毒产生影响，可能无法完全消灭病毒，但可使已感染儿童的病情变得极其轻微且短暂。连续两天服用 20 万国际单位无效。关于这一切的权威研究即将公布。在一项针对志愿者唾液中风疹分泌型 IgA 的初步研究中，免疫科学公司（Immunosciences）的沃伊达尼（Dr. Vojdani）医生发现，32 名儿童中有 14 人得分阳性，其中 5 人得分≥5+。我们正在进行更权威的研究，分析血清 IgG 和唾液分泌型 IgA，以尝试建立两者的相关性。
根据现有证据，我目前的建议是：如果您的孩子符合以下条件： · 血清风疹 IgG 抗体高和 / 或唾液分泌型 IgA 抗体高， · 髓鞘碱性蛋白（MBP）或其他神经抗体升高（提示自身免疫过程）， · 有接种 MMR 疫苗后出现反应或发育倒退的病史， · 存在持续性肠道问题，
您的孩子可能患有肠道麻疹（许多接受内镜检查和 PCR 检测的儿童证实了这一点，甚至在一组儿童的脊髓液中发现了疫苗株麻疹病毒）。如果无法通过内镜检查和肠道活检获得阳性报告，许多家长已给孩子服用高剂量维生素 A。方案可能变化，但目前是连续两天 40 万国际单位，之后根据孩子的年龄和体型每日 1 万至 2.5 万国际单位。血液检测遗憾地不可靠，但临床观察非常重要。颈部周围的粗糙皮疹通常是维生素 A 毒性的迹象之一；头痛（儿童可能无法表述）是另一迹象。嗜睡、过度活跃或任何异常迹象都应考虑为维生素 A 过量的可能。其毒性被高度夸大，尽管有一名儿童在服用 10 万国际单位后出现脑积水的报道，但我听说该儿童停用维生素 A 后恢复正常。仅有一例成年男性因仅食用北极熊肝脏导致维生素 A 毒性死亡的案例。除此之外，维生素 A 是急需且相当安全的维生素，但它会储存在肝脏中，因此 40 万国际单位可能应作为单次治疗，或每年重复不超过两次。请注意：这些是我个人的建议，目前尚未有同行评审研究，因此我们仍有很多未知，需要尽可能多的反馈。一些家长报告称这些剂量的维生素 A 带来了奇迹般的改善，但绝非普遍现象。关于检测，请至少进行血清 IgG 检测，如果能让孩子吐唾液，进行唾液 IgA 检测。如有新发现，我会及时告知。
杰奎琳
如需阅读麦坎德莱斯医生关于维生素 A 的更多信息，请点击此处。
[感谢麦坎德莱斯医生允许我在网站上使用这些信息]
[color=rgb(0, 0, 0) !important]额外毒性迹象
除了麦坎德莱斯医生上述的毒性迹象外，我在另一个留言板上发现了以下列表：
维生素 A 毒性症状：
· 囟门隆起（婴儿） · 骨痛或肿胀 · 颅骨软化（婴儿和儿童） · 皮肤和头发变化 · 脱发 · 脂溢性皮炎 · 嘴角开裂 · 易怒 · 食欲下降 · 体重增长不佳（婴儿和儿童） · 呕吐 · 嗜睡
对我的孩子来说，毒性症状包括干燥瘙痒的皮疹、头痛、胃部不适和嘴角开裂。我读到过几例儿童在嗜睡和过度活跃之间交替的报道。
[以下是我儿子的经历，我并非医学博士。本部分之后是另一个家庭的经历。]
[注意：病毒严格来说并非 “有生命”，因此我提到的 “病毒消亡” 或 “杀死病毒” 在技术上并不准确。我已尝试使用 “清除病毒” 一词。许多医学专业人士更倾向使用 “抑制病毒”。]
简要病史：儿子 7 岁半，一直有视觉刺激问题，时好时坏。通过调整饮食和补充剂，以及螯合治疗，症状可耐受但持续存在。
我曾给孩子每天服用 TwinLabs Allergy A 的极高剂量（虽未达到上述推荐剂量），持续约一个月，毫无改善，视觉刺激问题依旧，且从未出现毒性迹象。
我尝试了麦坎德莱斯医生推荐的高剂量维生素 A 方案以清除麻疹病毒。我使用了 TwinLabs Allergy A，按上述方案连续两天服用，随后在接下来几天缓慢减量。第 6 天，儿子出现毒性皮疹。我在接下来几天更快地减量，最终停药几天直至皮疹消退。皮疹消失且他的视觉问题缓解后，我再次开始服用。
几周后，维持剂量不足，视觉刺激问题再次出现。
啊啊啊！！！
[事后评论：关于麻疹病毒消耗维生素 A 的说法似乎正确。在我再次执行该方案前，无论我将维生素 A 剂量提高多少，它都会被孩子的身体 “吸干”。低剂量时，效果几分钟内消失；高剂量时，效果持续几天，但仍会被 “吸干”。]
因此我尝试了 “更激进的方法”。他的皮疹已消退，即使在相对较高的每日维持剂量下，视觉问题仍复发。
这次我给了更高剂量的 TwinLabs Allergy A，加上 1 万国际单位鳕鱼肝油（CLO）。第二天出现毒性皮疹。皮疹出现时，我给他服用了橄榄叶提取物（一种抗病毒剂）。第三天，我减至 2.5 万国际单位（TwinLabs + CLO），并继续服用橄榄叶提取物。服用第二次橄榄叶提取物约一小时后，他出现严重腹泻，粪便顺着腿流到鞋子上，非常糟糕。
接下来几天，即使在 “较低的维持剂量” 下，视觉问题也未出现。我停用了橄榄叶提取物，几天后停用了 TwinLabs。现在每天给他约 1 万国际单位鳕鱼肝油，似乎足够。
我给麦坎德莱斯医生发了电子邮件（供她参考和研究），询问如果视觉问题再次出现该尝试什么。她提供了某些检测、处方药和非处方药信息，包括月桂酸甘油酯（因橄榄叶提取物的成功）。
我给 2 号孩子服用橄榄叶提取物时，也给 3 号和 4 号孩子服用了。当我从 2 号孩子处停用橄榄叶提取物时，也从 3 号和 4 号孩子处停用。2 号孩子未出现问题，但 3 号和 4 号孩子都爆发了严重皮疹，4 号孩子的眼睛还出现了分泌物 —— 这是她在第 50 轮螯合治疗后从未有过的。因此我重新给他们服用橄榄叶提取物。3 号孩子原本通过螯合治疗和调整饮食补充剂几乎消失的皮疹，在停用橄榄叶提取物后明显复发，现在又消失了。4 号孩子的新皮疹和眼部分泌物也消失了。
在此期间，2 号孩子在每日 1 万国际单位剂量时出现维生素 A 毒性皮疹，我减至 5000 国际单位。这维持了几周，随后皮疹再次出现。我减至每日 2500 国际单位鳕鱼肝油。有趣的是，这个在生命前 7 年有严重视觉刺激问题的孩子，现在没有刺激行为，且只能耐受 2500 国际单位 / 天！除了皮疹，当维生素 A 过量时，他还会轻微亢奋并开始出现视觉刺激行为。非常奇怪。
月桂酸甘油酯于 1 月 3 日送达。我一直在试验橄榄叶提取物，3 号和 4 号孩子的皮疹随橄榄叶提取物的用量增减而反复。我暂时停用橄榄叶提取物，尝试用月桂酸甘油酯解决皮疹问题。
2 号孩子现在服用 2500 国际单位鳕鱼肝油时出现维生素 A 毒性皮疹、轻微亢奋和视觉刺激行为复发。非常非常非常奇怪。我现在尝试 1250 国际单位鳕鱼肝油。
更新：
我的孩子们对月桂酸甘油酯有不良反应，我停用后重新开始使用橄榄叶提取物，这消除了月桂酸甘油酯的所有负面影响，且抗病毒效果增强。约一个月后，我能再次添加月桂酸甘油酯，尽管病毒消亡现在会引发酵母问题。具体经历请点击此处。
我不得不让 2 号儿子完全停用维生素 A 约一个月，随后视觉问题复发，我重新添加。经过多次剂量试验，我确定每日 1000 国际单位是安全的。低于或高于此剂量，视觉问题都会复发。
我儿子从该方案中获得的益处：
· 不再有视觉刺激行为！语言能力提升，尤其是自发使用单词而非手势。残留的模仿言语消失。社交互动和假装游戏增加。爷爷圣诞节送了 4 号孩子一个玩具屋，我们在这里组装时，2 号孩子径直走过去，没有像几年前那样把人物玩偶排成一排。他让玩偶坐在桌边说 “人吃饭”，把它们放在床上说 “人睡觉”。他玩得很开心，以至于 4 号孩子很难从他手中接过玩具屋。我出去又买了一个酒店主题的玩具屋。2 号孩子把玩偶放在泳池里说 “水，滑梯，哇 ——”，让它们坐电梯说 “人上升，人下降”，“看电视”，“坐在沙发上”，“坐在椅子上，在桌子上吃饭”，甚至互相呼唤 “嘿，伙计，过来，坐在沙发上，看电视”。
我的[color=rgb(0, 0, 0) !important]非医学观察：
我的儿子需要高于上述推荐的剂量，加上橄榄叶提取物。我不建议高剂量服用超过两天。两天后，减至维持剂量。如果视觉问题复发，您的孩子[color=rgb(0, 0, 0) !important]可能需要再次执行该方案，或需要其他抗病毒药物（如橄榄叶提取物），或需要更高或更低的维持剂量，或完全需要其他治疗（例如，酵母会导致我儿子的视觉问题复发，对他来说，病毒消亡会引发酵母问题）。
在高剂量方案期间，注意毒性迹象。我儿子出现了皮疹，但您孩子的迹象可能不同，例如嗜睡、恶心、头痛或麦坎德莱斯医生信息中列出的任何症状。如发现任何症状，停止高剂量方案。
另一个家庭的经历：
我女儿接受高剂量维生素 A 治疗时 5 岁半。她在 20 个月大时，即第二次接种 MMR 疫苗后两周，出现发育倒退。失去了之前获得的运动技能，开始从眼角斜视。有脂肪消化不良和其他胃肠道症状。由于活动性癫痫，我一直推迟高剂量维生素 A 治疗。她未服用任何药物。
她 4 岁时，每天服用 1 万国际单位维生素 A 约 8 个月。我短暂停用后增至 2 万国际单位，持续约 3 个月。服用维生素 A 期间，她的胃部不适减轻，情绪更稳定。在高剂量治疗前，我停用了维生素 A，部分原因是试图解决她的焦虑问题，部分原因是准备进行高剂量治疗。
尽管有焦虑，她的健康状况稳定，于是我开始让她服用 1000 微克舌下含服甲基 B12。她出现亢奋反应，我试验了五天后放弃。当天她排出白色粪便，这是未知程度肠道危机的迹象，我停止了 B12 试验。
我试图让她恢复之前的稳定状态，但她的健康状况恶化，焦虑加剧。达娜（Dana）在酶类列表中发帖称橄榄叶提取物对焦虑有效，我开始使用，逐渐增至 500 毫克，每日三次。这消除了焦虑，但我越来越难以控制酵母问题。
橄榄叶提取物用完后（她已服用 500 毫克，每日三次约 6 周），2.5 周后她突发高烧，持续两天，随后口腔出现带红圈的白斑，低烧、扁桃体肿大、耳朵内侧发红，情绪波动大。我注意到癫痫发作增加，这在生病时很常见。我认为这是亚临床麻疹（无皮疹的麻疹）。
发烧第四天，我给她服用 2.5 万国际单位来自比目鱼肝油的维生素 A，情绪显著改善。癫痫活动恢复正常，但这可能是健康改善的结果，而非维生素 A 的直接作用。第二天我给她 5 万国际单位维生素 A，情绪稳定。第六天未服用，情绪稳定性崩溃。
第七天，我给她 40 万国际单位维生素 A，情绪稳定，眼神接触变得完美，此后一直保持。第八天再次服用 40 万国际单位，她出现轻微易怒。她不再焦虑，也不再服用橄榄叶提取物，仍有癫痫发作。
6 个月后，益处仍未消失，她连续两天服用 5000 国际单位维生素 A 后才开始出现易怒。
癫痫信息：
完成高剂量维生素 A 治疗几天后，我开始试验亚叶酸和舌下含服甲基钴胺素片，旨在找到让她耐受 B6 的方法。我确定了 1 粒亚叶酸（800 微克）与 2 毫克甲基 B12 同时服用。令我惊讶的是，她不再出现头部下垂，简单部分性发作显著减少。添加 B6 时我非常兴奋，发现她现在能耐受，且任何类型的癫痫发作都停止了。停药约 24 小时，就会出现一次简单部分性发作。自开始服用 B12 以来，她从未出现过头部下垂。
[感谢桑德拉（Sandra）允许我在网站上使用她的故事。]
High Dose Vitamin A Protocol [for measles virus][The first portion of this page was written by Dr. Jaquelyn McCandless.] Message #1 Re the 400,000iu for two days (Mega A Rx for measles): This is reposting of Vit A Rx for those who missed it. I'm concerned that someone is giving 500,000iu in the CLO form because of the danger of Vit D toxicity. Though current fears of that are probably overestimated, I think it is unwise to give that much until we learn a lot more. At the DAN!, (in PA) Dr. Sidney Baker spoke of a study showing that 200,000 iu of Vitamin A was not enough to ameliorate the impact of measles infection - the children needed 400,000 iu for two days (800,000 iu total). As I have said, if the rubeola IgA salivary titers are elevated (per our study), IgG levels are very elevated, the child has a history of strong reaction to MMR and/or followed by regression soon thereafter, and certainly with brain antibodies indicating autoimmune reaction, I believe there is indication they may benefit from this large dose, followed by 10,000 to 25,000 per day per age and size. Some parents are reporting benefit from even smaller doses, as I was originally suggesting 250,000 iu 1st day, then 200,000, then 150,000 etc. with maintenance at 10,000 to 25,000 (subtracting the up to 5000 in CLO, with the rest in fish oil A or vit A palmitate.) What kind to use? Fish oil vit. A vs vit. A palmitate? Dr. Pangborn has given me the following information - "Per the Merck Index, the palmitate form of all-trans or retinol is the preponderant ester in fish liver oils (cod, shark). But I do not like synthetic vit A palmitate unless one has to use pharmacologic doses such as Sid (Baker) is describing. ------ Synthetic palmitate can be a problem in allergically sensitive individuals. ----- Natural fish oil includes all-trans-retinol, -ci-retinol, and probably some very similar molecules. There's no guarantee that a synthetic palmitate will have these. -----I'm wary of synthetics, but again, for >200,000 iu doses one may have to use what's practical. (This is item 10150 ("Vitamin A") in the Merck index.) To be practical in solid or powder supplements, one finds vit A acetate. Some potency is lost in the acetate form, about 15%. Under 5000 iu, there's no reason to test serum retinol levels. Actually, tests are not reliable anyway. The most important thing is to watch for symptoms of A overdose: headache, nausea, dry scaly skin, vertigo, blurred vision and erythema or rash. Serum calcium will be elevated, as hypervitaminosis A features hypercalcemia."
Message #2
I am getting lots of personal e-mails on this subject, so want to clarify. Vitamin A is particularly "used up" when measles virus is present, and it has been shown that in the presence of active measles virus, a 2-day mega-dosing of 400,000 iu of Vitamin A will affect the measles virus, maybe not to completely exterminate it but to create an extremely mild short-lived case in those who have already contracted the disease. 200,000 iu for 2 days was not effective. Definitive studies on all this are on the horizon. In a preliminary study of rubeola secretory IgA from saliva from volunteers from your groups, Dr. Vojdani at Immunosciences discovered 14 out of 32 kids had positive scores, 5 of them at 5+. We are in the process of a more definitive study analyzing both IgG in serum as well as secretory IgA in saliva to try and get a correlation between the two. My current recommendations based on the evidence is that IF your child: has high serum IgG rubeola antibodies and/or high secretory IgA antibodies (saliva),
the MBP or other neural antibodies are elevated (indication of autoimmune process),
there is a history of reaction to or regression after the MMR vaccine,
and there is ongoing gut problems, your child may have intestinal measles, as many who have been scoped and PCR'd do (even spinal fluid has been found in a group of kids to have positive vaccine strain measles). Without the benefit of scoping and getting positive biopsy reports on the gut, many parents have given their kids high doses of Vitamin A. The protocols change, but currently is 400,000 IU for two days, followed by 10,000 to 25,000 depending upon the size and age of the child. Blood tests are unfortunately not useful, but clinical observation is very important. A scruffy rash usually around the neck, is one evidence of Vit A toxicity; headache which kids may not be able to tell us about, is another. Lethargy or excessive hyperactivity or any unusual sign should be considered a possible overdose of A. The toxicity of this is highly overstated, and though there is a history of a child getting hydrocephalus after getting 100,000, I heard that the child became normalized after being taken off the Vitamin A. There has been one death from Vit A toxicity in an adult male who ate nothing but polar bear livers. Otherwise, it is a much needed and quite safe vitamin, but it does store in the liver, so 400,000 iu should be probably a one-shot treatment, or certainly not to be repeated more than twice a year. PLEASE NOTE: These are MY recommendations and not others at this point, and there have been NO peer-reviewed studies, so please know there's a lot we don't know, and we need as much input as possible. Some parents are reporting miraculous improvements with these doses of A, but not all by any means. As far as testing, please at least get the serum IgG tests and if you can get your child to spit, the salivary IgA. I'll let you know more as I find out.
Jaquelyn For more information written by Dr. McCandless about vitamin A, click here.
[my thanks to Dr. McCandless for allowing me to use this information on my site]
Additional signs of toxicity
In addition to those sign of toxicity indicated by Dr. McCandless above, I found the following list on another message board Symptoms of vitamin A toxicity:
Bulging fontanelles (infants)
Bone pain or swelling
Craniotabes (infants and children)
Skin and hair changes
hair loss
seborrhea
cracking at corners of the mouth
Irritability
Decreased appetite
Poor weight gain (infants and children)
Vomiting
Drowsiness
For my kids, toxicity symptoms have included dry and itchy rash, headache, upset stomach, and cracks in the corners of the mouth. I have read a few accounts of children alternating between lethargy and hyperactivity.
[This section is my son's experience. I am not a medical doctor. Following this section is the experience of another family.]
[NOTE: Viruses are not technically "alive", so any reference I make to "viral die off" or "killing virus" is not technically correct. I have tried to use the term "eliminate the virus". Many medical professionals prefer to use the term "suppress the virus".] Brief history: Son age 7-1/2, always has had visual stim issues, sometimes better than other times. Addressing food and supplement requirements, and chelation, made them tolerable but still there. I gave TwinLabs Allergy A at a very high dose, altho not as high as recommended above, every day for about a month with no change, still had visual stim issues, never developed signs of toxicity. I tried the high dose vitamin A protocol as recommended by Dr. McCandless to kill measles virus. I used TwinLabs Allergy A, and followed the protocol as indicated above, for two days, then reduced slowly over the next few days. On the 6th day, my son developed the toxicity rash. I reduced more quickly over the next few days, finally stopping for a few days to let the rash go away. Then I started it again when the rash was gone and his visuals had returned. After a few weeks, this maintenance dose was not enough, he was developing his visuals again. AARRGGHH!!!!!! [My after-the-fact comment: It appears that what is reported about measles virus sucking vitamin A is correct. Until I did this protocol again, see below, no matter how high I went with vitamin A dosing, it would just be sucked right out of my son's body. If lower dose, the effect was gone in minutes. At higher doses, it took days. But it was still just sucked right out of his body.] So I tried a "more aggressive approach". His rash was gone, visuals back again even at a relatively high daily maintenance dose. So this time I gave an even higher dose of TwinLabs Allergy A, plus 10,000 IU CLO. The toxicity rash appeared on the second day. When the rash appeared, I gave him olive leaf extract [an anti-viral]. The third day, I reduced to the 25,000 IU [TwinLabs plus CLO], plus olive leaf extract. About an hour after this second dose of OLE, he had a major runny bm, ran all down his leg and all over his shoes. Nasty stuff. No visual problems for several days, even at the "lower maintenance dose". I removed the OLE and then a few days later the TwinLabs. Now I give him about 10,000 IU CLO per day and it seems to be sufficient for him. I sent email to Dr. McCandless "for her information and research purposes" and asked if she could give suggestions on what I might try if the visuals came back again. She gave me information for certain tests, rx and OTC items, including Lauricidin [because of the olive leaf extract success]. I had also given #3 and #4 the OLE when I was giving it to #2. When I removed it from #2, I also removed it from #3 and #4. #2 showed no problems with it removed. #3 and #4 had not shown any changes when I was giving it. However, when I removed it, #3 and #4 both exploded in major skin rashes, and #4 also had goo in her eye, which she had not had since about round 50 of chelation. So I started back the OLE for them. #3 has had a lingering skin rash, which was *almost* gone with chelation and addressing various other food and supplement issues, but was still lingering in a small amount and was much more pronounced when OLE was removed. Now it is gone. #4 new skin rash is gone now also, plus the goo is gone from her eye. During this time, my #2 developed the vitamin A toxicity rash at the 10,000 IU per day dose, so I reduced to 5000 IU. This worked for a few weeks, then the rash appeared again. So I reduced to 2500 IU per day CLO. This is really amusing to me, that my son who had major visual stims for basically the first 7 years of his life, now has no stims and can only tolerate 2500 IU per day! In addition to the rash, my son will also be slightly hyper and begin his visual stims when he has too much vitamin A. Very strange. The Lauricidin arrived on January 3. I had been experimenting with the OLE, and the rashes come and go depending on how much OLE I give to #3 and #4. I will drop the OLE for now and try the Lauricidin for the rash issue. #2 now has the vitamin A toxicity rash, slight hyper, and return of visual stims with 2500 IU of CLO. Very very very very strange. I will now try the 1250 IU CLO. Update My kids had problems with the Lauricidin, so I dropped it and began olive leaf extract again. This removed all the negatives of the Lauricidin, and the positives of anti-viral are increasing. After about a month, I was able to add the Lauricidin again, altho viral die off now causes yeast. For specifics on this experience, click here. I had to entirely drop the vitamin A for my #2 son for about a month, then the visuals returned and so I added it back. After much experimenting with the dose, I determined that 1,000 IU per day is okay. Less than that, or more than that, and the visuals return. My son's benefits from this protocol: No more visual stims! Increased language, especially in spontaneity of use of words rather than gestures. Loss of residual echolalic speech. Increased social interaction and pretend play. My #4 received a dollhouse from Grandpa for Christmas. When we set it up here, #2 went right over to it and did NOT line up the people figures like he would have done a few years ago. He sat the people at the tables and said "man eat" [he is still at phrases only, for the most part], he put them in the beds and said "man sleep". He had so much fun that #4 had trouble getting him to let HER play with it. So I went out and bought another one, this one is a hotel. #2 put the people in the pool and said "water, slide, weeeeee". He puts them in the elevator and says "man go up, go down", they "see TV", they "sit on couch". They "sit on chair, eat on table". They even call out to each other "hey man, come here, sit on couch, see TV". My *non-medical* observations: My son needed a higher dose than that recommended above, plus the addition of olive leaf extract. I would not recommend giving the high dose for more than two days. After two days, reduce down to a maintenance dose. If the visuals return, your child *might* need this protocol again, or he might need OTHER anti-viral [like olive leaf extract]. Or your child might need a higher or LOWER maintenance dose. Or your child might need something else entirely [for example, yeast will cause my son's visuals to return, and for my son, viral die-off caused yeast]. During the high dose protocol, watch for signs of toxicity. These might be the rash, as my son experienced. But your child's signs might be different, for example lethargy, nausea, headache, or any of the symptoms listed above in Dr. McCandless' information. If you notice any of those symptoms, stop the high dose protocol. Another family's experience My daughter was 5-1/2 when we did the high dose vitamin A. She had regressed at 20 months, two weeks to the day after her second MMR shot. She lost motor skills previously acquired and began looking from the sides of her eyes. She had symptoms of poor fat digestion and other GI issues. I had held off doing the high dose vitamin A because of an active seizure disorder. She was not on any medication. She had taken 10,000 iu of vitamin A every day for approximately 8 months when she was 4 years old. I stopped it briefly and then increased it to 20,000 iu for about 3 months. She appeared to have less stomach troubles and a more even mood with the vitamin A. I had stopped giving vitamin A prior to the high dosing. In part because I was trying to solve her anxiety issues and in part because I was readying to do the high dose. Her health was stable in spite of the anxiety so I started her on 1000 mcg of sublingual methyl B12. She had a hyper reaction to it, I experimented but gave up by the fifth day. She had a white stool that day which is the sign of gut crisis of unknown quantity, so I stopped the B12 experiment. I tried to bring her back to her previous stability but her health declined and the anxiety became extreme. Dana posted on the enzymes list that Olive Leaf Extract worked for anxiety so I implemented it, working up to 500 mg three times a day. This eliminated anxiety but I had increasing difficulty controlling yeast. I ran out of OLE, she had been on 500 mg, 3 times a day dose for approx 6 weeks. 2-1/2 weeks ago later she spiked a high fever that ran for 2 days. Then developed white spots with red rings in her mouth. She ran a low grade fever, swollen tonsils and pink inside her ears. Her mood was all over the place. I noticed an increase in seizures which is normal during illness. I believe this was subclinical measles, measles without rash. On the fourth day from the start of fever, I gave her 25,000 iu of vitamin A from halibut liver. This caused a significant improvement in mood. Seizure activity normalized but that may be because her health was improving any way, not a direct result of the vitamin A. The next day I gave her 50,000 iu of vit A and her mood stabilized. The 6th day I gave none and her mood stability disintegrated. I gave 400,000 iu of vit A on day 7. Her mood stabilized and her eye contact became perfect, she has retained eye contact since. I gave 400,000 iu of vit A on day 8 and she had mild irritability. She has no anxiety and she is no longer taking OLE. She is still having seizures. 6 months later the benefits have not worn off yet and she can take 5,000 iu of vitamin A two days in a row before she begins to show irritability. Seizure info: A few days after completing the high dose vitamin A, I began trials of folinic acid and methylcobalamin sublingual tabs. The intent was to find something that would allow her to tolerate B6. I settled on 1 capsule of folinic, 800 mcg given at the same time as 2 mg of mB12. To my surprise she stopped having head drops and the amount of simple partials declined significantly. I was quite excited when I added B6, found that she now tolerated it and stopped having seizures of any type. It only takes about 24 hours without her B vitamins and a simple partial seizure will occur. She has not had a head drop since starting the B12. [My thanks to Sandra for allowing me to use her story on my site.]
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发表于 2025-5-7 19:40:20